Extension
For Parents of Children with Chronic Illness
The Hospital Became the Household
You became the expert in your child's illness. This is where you become an expert in yourself again.
For the parent of a child with chronic illness who has reorganized their entire life around the diagnosis and lost track of who they are outside it.
The Name It First Experience
You know every medication, every specialist, every protocol. You have become the world's foremost expert in your child's condition. And somewhere in all of that, you stopped knowing who you are. This workbook names the parent identity that exists alongside the medical caregiving. The output is not a care plan. It is The Parents of Children with Chronic Illness Identity Charter.
You can opt into 30-, 60-, and 90-day check-ins from your account. We recommend you do — the point is to see what changed.
Sample questions
- Who were you before this diagnosis reorganized your life — and what do you remember about that person?
- What do you love about your child outside of the illness — the full person they are?
- What do you need — for yourself — that you haven't let yourself want while all of this is happening?
Research basis
Pediatric caregiver burden research (Cousino, Hazen): parents of children with chronic illness show elevated rates of anxiety, depression, and PTSD compared to parents of healthy children. Compassion fatigue (Figley): secondary traumatic stress in medical caregivers is well-documented / parents are the most undertreated group. ACEs and family resilience research: caregiver psychological health is the primary predictor of child emotional adjustment to chronic illness. Family systems theory (Bowen): chronic illness reorganizes the entire family system / the identified patient's illness becomes the family's identity unless explicitly addressed. Narrative therapy (White, Epston): externalization of illness separates the child from their diagnosis / the same move is needed for the parent's identity.
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Every format asks the same questions and produces the same document.
Print Paperbackpersonalize
A real book and a pen. Write in the margins. The most permanent version of you on a page.
$19.99
eBook + journal
The full guide on any screen, with a companion journal to write your answers by hand.
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Audiobook
We read every question and every scenario aloud. For the commute, the walk, the dishes.
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Hardcoverpersonalize
The keepsake edition — sewn, ribboned, made to sit on a shelf and be returned to.
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Digital Fill + membership+membership
Answer on screen. Your responses save as you go and assemble into your finished document.
$9.99
Hands-Free Interactive + membership+membership
Listen to each question and speak your answer. We capture it. You never touch a keyboard.
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Choose your pace.
The Essential path takes you to your finished document by the questions that matter most. The Full-depth path walks every question, every scenario, every angle. Both produce the same signed document — one just goes deeper on the way there.
Essential path
Shorter sessions. The questions that go directly to the document.
Full depth
Every question. Every scenario, every angle.
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